Thanks to Arianna for keeping this blog up and running while I was feeling bad in the hospital, and announcing my escape last week. She stayed with me until Thursday, when Greg arrived. For three days Greg and I walked all over the borough, and even into Brooklyn. I feel energized by the ability to move freely and am thankful for the great weather we’ve had. Even my vision and hearing seem to be improving, if only slightly.
My mom and dad have been with be since Greg’s departure on Monday and we are having a good time getting outside to explore. I had the follow-up appointment on Tuesday with the radiation oncologist to discuss the way forward. He told me that they will redo a brain MRI and a brain PET in 3-4 weeks, so long as I continue to have zero neurological symptoms. He said that this will allow the hemorrhage to calm down and will give all parties a sense of what we are actually dealing with (TIL mediated swelling, and a treatment success story or an active melanoma that has resisted treatment and still needs radiation or surgery). I feel fortunate to not need treatment NOW and to have remaining hope that the TIL’s are working.
I’ll be heading back to DC on the 26th, absent any new activity. I’m looking forward to seeing Arianna, Oryn, Eloise and Truman again š
Updates on Jeff's treatment 